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Cultivating Caregiving

Seeds of Sorrow, Gardens of Growth — May 2024

Reimagine Events > Cultivating Caregiving

More than 53 million unpaid Americans provide care to a spouse, elderly parent or relative, or to a child with special needs. The caregiving experience most often includes struggle, stress, fatigue, guilt, and grief. But can it also be a life-transforming experience to find purpose? A discovery of what matters most for you and the person in your care?

Caregiving is commonly described as an experience in which caregivers cultivate resilience and endurance. But are there opportunities for caregivers to not only bounce back, but also bounce forward? Is there a new appreciation for life? A chance to rebuild a relationship? A possibility to increase personal strength and collective solidarity with other family caregivers?

Programming produced by Reimagine staff and its collaborative community of event hosts will focus on a number of themes related to caregiving:

- For caregivers of all ages, what kind of support, resources, and opportunities are available?

- What are the ways in which caregivers navigate and process anticipatory grief as their loved ones decline?

- What challenges and opportunities are there for long-distance caregivers?

- What solutions are there to our crisis of care and the absence of guaranteed paid leave?

- How are health systems and workplaces adapting to the needs of caregivers, particularly those from immigrant families, those of diverse cultural, spiritual, and faith traditions, and those with limited English proficiency?

- What do you say to a burnt-out family caregiver to provide them with comfort? Better yet, what do you DO for them?

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Upcoming Events

Let’s Take Action: From Burnout to Blossom

Jessica McGlory and Neal K. Shah offer small, sweet steps to transform caregiver grief into growth. Moderated by news anchor, journalist, and filmmaker Richard Lui.

Journalist Richard Lui, who anchors at MSNBC and NBC News, moderates a conversation with two Millennial caregiver-entrepreneur-innovators: Jessica McGlory, who founded Guaranteed to transform end-of-life care and Neal K. Shah, who launched CareYaya to connect experienced student caregivers with care recipients. 

Following their discussion, we invite you to join small peer-led breakout room sessions guided by the following prompts:

  • What are your greatest challenges as a caregiver?
  • If you’ve experienced any growth as a caregiver, what does that look like? Have you gained insights about yourself? 
  • What action can you take to transform grief into growth? 

Jessica McGlory is the Founder and CEO of Guaranteed, a tech-forward startup transforming the end-of-life healthcare experience from terminal prognosis through bereavement. Inspired to start the company from the personal experience of being her father's caregiver during his time in hospice care, Jessica came up with the idea of a tech-enabled hospice care delivery model that was focused on dedicating support to both the patient and the family. Prior to Guaranteed, Jessica helped grow customer centric brands like Bombas as an early stage startup operator.

https://www.onguaranteed.com/

@onguaranteed

Neal K. Shah is the CEO of CareYaya Health Technologies, one of the fastest-growing health tech startups in America. He runs a social enterprise and applied research lab utilizing artificial intelligence and human capital innovation to advance health equity through technology. Neal is a “Top Healthcare Voice” on LinkedIn with a 30k+ following, having led partnerships with top healthcare systems in America. Neal is a former hedge fund manager turned social entrepreneur after deeply personal experiences with caregiving. Motivated by creativity and humanitarian progress, he co-founded CareYaya. Its flagship product is a technology platform that lets people quickly book experienced caregivers that are uniquely all students in the healthcare field, helping expand the care workforce amidst a critical caregiver shortage. In addition, CareYaya is launching new applications of artificial intelligence to help people better manage caregiving, aging and serious illness. Its mission is to empower family caregivers and create a better future for care. Previously, Neal founded and managed a $250 million investment fund in New York, including a focus on healthcare investments, and prior to that, was a partner at a $1.5 billion private equity and hedge fund focusing on a variety of sectors. He started his career in investment banking at Credit Suisse First Boston, after graduating from the University of Pennsylvania with degrees in philosophy and economics.

www.careyaya.org

@wearecareyaya

Richard Lui (moderator) is a journalist, anchoring at MSNBC and NBC News and has covered many of the network’s major breaking stories, including the Arab Spring, the deaths of Supreme Court Justice Antonin Scalia and Senator John McCain, the Newtown massacre, and more. His breaking news field reporting includes being on the ground for the Paris and San Bernardino ISIS-related terror attacks, and in Ferguson and Baltimore during widespread civil unrest. Before joining MSNBC, Lui spent five years at CNN Worldwide, anchoring at CNN Headline News. Lui became the first Asian American male in America to anchor a daily national cable network news program in 2007. Lui has received awards for his reporting, including Peabody and Emmy team awards, NEA’s Human and Civil Rights Award, AAJA Suzanne Ahn Civil Rights and Social Justice Award, Champion in Media Award from the Multicultural Media Correspondents Dinner at the National Press Club, Freedom of the Press Award from NAISA Global, and others. Richard is also an AARP Caregiving Champion, Alzheimer’s Association Celebrity Champion, and BrightFocus Foundation Ambassador.

His first book, Enough About Me, published by HarperCollins Zondervan, focuses on the unexpected power of selflessness. In it, he addresses the “selfish pandemic” of our time and accessible ways to personally and institutionally counter the problem. His first feature film, SKY BLOSSOM, focused on caregiver kids in Military Families. The film was inspired by Lui’s eight years of long-distance caregiving for his father, traveling 20 hours roundtrip three times a month from New York to California. His second documentary feature, UNCONDITIONAL, released in 2023, is a groundbreaking 7-year long effort shedding light on caregiver’s mental health.

https://richardlui.com/

https://skyblossom.com/ 

https://www.unconditionalmovie.com/

@richardlui

About the Series

Cultivating Caregiving: Seeds of Sorrow, Gardens of Growth 

More than 53 million unpaid Americans provide care to a spouse, elderly parent or relative, or to a child with special needs. The caregiving experience most often includes struggle, stress, fatigue, guilt, and grief. But can it also be a life-transforming experience to find purpose? A discovery of what matters most for you and the person in your care? 

Caregiving is commonly described as an experience in which caregivers cultivate resilience and endurance. But are there opportunities for caregivers to not only bounce back, but also bounce forward? Is there a new appreciation for life? A chance to rebuild a relationship? A possibility to increase personal strength and collective solidarity with other family caregivers? 

Programming produced by Reimagine staff and its collaborative community of event hosts will focus on a number of themes related to caregiving:

  • For caregivers of all ages, what kind of support, resources, and opportunities are available?
  • What are the ways in which caregivers navigate and process anticipatory grief as their loved ones decline? 
  • What challenges and opportunities are there for long-distance caregivers?
  • What solutions are there to our crisis of care and the absence of guaranteed paid leave?
  • How are health systems and workplaces adapting to the needs of caregivers, particularly those from immigrant families, those of diverse cultural, spiritual, and faith traditions, and those with limited English proficiency? 
  • What do you say to a burnt-out family caregiver to provide them with comfort? Better yet, what do you DO for them?

About RCI

The Rosalynn Carter Institute for Caregivers was established in 1987 by former First Lady Rosalynn Carter to promote the health, strength, and resilience of America’s 53 million family caregivers. RCI fulfills its promise to champion the family caregiver by building cross-sector partnerships, leading research projects and strategic initiatives, developing and implementing evidence-based programs, and advocating for public policy.

https://rosalynncarter.org/

@rcicaregiving

About Reimagine

Reimagine is a nonprofit organization catalyzing a uniquely powerful community–people of different backgrounds, ages, races, and faiths (and no faith) coming together in the hopes of healing ourselves and the world. We specifically support each other in facing adversity, loss, and mortality and–at our own pace– actively channeling life's biggest challenges into meaningful action and growth.

www.letsreimagine.org

@letsreimagine

Type:

Talk, Panel, & Conversation, Community Gathering,
Caregiving, Grief, Healthcare, Living Fully, Social Justice & Race,
Former First Lady Rosalynn Carter

This event is in honor of Former First Lady Rosalynn Carter

Rosalynn Carter (August 18, 1927 – November 19, 2023) began her caregiving journey at an early age. From the time of her father’s cancer diagnosis to his passing when she was 13, Mrs. Carter helped care for him and her younger siblings. Within a year of his death, her grandmother unexpectedly passed away, and her grieving grandfather moved into their home so her mother could care for him. Since that time, President and Mrs. Carter navigated many of their own caregiver experiences in their life together. It was this journey, and the similar stories of countless other Americans, that inspired Mrs. Carter to found the Rosalynn Carter Institute for Caregivers in 1987.
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Zoom

$0 - $30

Past Events

Let’s Experience: So You’re a Caregiver, Now What?

May 15, 2024

In this workshop, Jessica Guthrie shares a decade-long care journey with her mother, an opportunity for reflective writing on our caregiver mindset, a set of strategies to address challenges, and prompts to develop a roadmap to move forward.

Jessica C. Guthrie says, “I often tell people that being my mother’s full-time caregiver was not on my 5-year plan or my vision board. I never thought that my life would completely change at 26 years old and that I’d still be caring for her 10 years later. I can honestly say there is no perfect score you get for being a great caregiver, or prize you win for mastering a skill, or even a grand celebration for getting through a new stage of your person’s disease.” 

Your caregiving journey will be filled with loneliness, frustration, doubt, fear, anxiety but also joy, love and compassion. 

During this session, participants will: 

  • Uncover some of the common challenges and opportunities we face as caregivers 
  • Articulate strategies for addressing your common caregiving challenges 
  • Reflect on our own mindsets & orientation toward our caregiving experiences
  • Create an initial game plan for how you desire to get unstuck and move forward on your journey 

Dr. Toni P. Miles, an RCI Visiting Scholar who serves as an Adjunct Professor at Morehouse School of Medicine, will offer remarks and provide insights into caregiver bereavement.

Jessica C. Guthrie is a visionary leader dedicated to reshaping the landscape of caregiving. She champions the cause of providing dignified, respectful, and compassionate care for loved ones. She believes in the power of deep empathy, patience, and unwavering curiosity, even in the face of adversity.

As a caregiver of her mother living with Alzheimer’s Disease, Jessica has observed the challenges faced by families, particularly those caring for individuals with dementia. She emphasizes the need for a fundamental shift in the way caregiving is approached, involving individuals, families, and healthcare professionals working in synergy. Through her platform "Career & Caregiving Collide™," Jessica shares her insights and pioneering ideas, guiding others in navigating the intersection of their professional careers and caregiving responsibilities. Her mission is to amplify diverse caregiving narratives and ensure caregivers feel fully supported. 

Jessica brings over 13 years of experience in the education and non-profit management & leadership fields. She is now using her experiences to drive her own entrepreneurial efforts to create a better, more equipped world for caregivers and their loved ones. She received her degree in Sociology & Education Policy at Dartmouth College and Master’s degree in Educational Leadership & Policy from Southern Methodist University in Dallas, TX. 

www.JessicaCGuthrie.com

@CareerCaregivingCollide  

Dr. Toni P. Miles is an RCI Visiting Scholar who serves as an Adjunct Professor in the Department of Community Health and Preventive Medicine at Morehouse School of Medicine. Dr. Miles brings a wealth of expertise in the fields of caregiving, geriatrics, chronic diseases, health disparities, and bereavement. Dr. Miles is advising on a broad portfolio of RCI programs and initiatives, while building the partnership between RCI and Morehouse College.  

Dr. Miles is a physician and epidemiologist by training, and her expertise has been recognized with Fellow status in both the Gerontological Society of America and the American Association of Public Health. Since 2010, she has focused on the health effects of bereavement. In 2020, she completed the first ever state-wide survey of new bereavement in Georgia, in partnership with the Georgia Department of Public Health and the Retirement Research Foundation. Based on these data, Georgia is now poised to lead the nation in policies to reduce the negative impacts of grief and loss.

About the Series

Cultivating Caregiving: Seeds of Sorrow, Gardens of Growth 

More than 53 million unpaid Americans provide care to a spouse, elderly parent or relative, or to a child with special needs. The caregiving experience most often includes struggle, stress, fatigue, guilt, and grief. But can it also be a life-transforming experience to find purpose? A discovery of what matters most for you and the person in your care? 

Caregiving is commonly described as an experience in which caregivers cultivate resilience and endurance. But are there opportunities for caregivers to not only bounce back, but also bounce forward? Is there a new appreciation for life? A chance to rebuild a relationship? A possibility to increase personal strength and collective solidarity with other family caregivers? 

Programming produced by Reimagine staff and its collaborative community of event hosts will focus on a number of themes related to caregiving:

  • For caregivers of all ages, what kind of support, resources, and opportunities are available?
  • What are the ways in which caregivers navigate and process anticipatory grief as their loved ones decline? 
  • What challenges and opportunities are there for long-distance caregivers?
  • What solutions are there to our crisis of care and the absence of guaranteed paid leave?
  • How are health systems and workplaces adapting to the needs of caregivers, particularly those from immigrant families, those of diverse cultural, spiritual, and faith traditions, and those with limited English proficiency? 
  • What do you say to a burnt-out family caregiver to provide them with comfort? Better yet, what do you DO for them?

About RCI

The Rosalynn Carter Institute for Caregivers was established in 1987 by former First Lady Rosalynn Carter to promote the health, strength, and resilience of America’s 53 million family caregivers. RCI fulfills its promise to champion the family caregiver by building cross-sector partnerships, leading research projects and strategic initiatives, developing and implementing evidence-based programs, and advocating for public policy.

https://rosalynncarter.org/

@rcicaregiving

About Reimagine

Reimagine is a nonprofit organization catalyzing a uniquely powerful community–people of different backgrounds, ages, races, and faiths (and no faith) coming together in the hopes of healing ourselves and the world. We specifically support each other in facing adversity, loss, and mortality and–at our own pace– actively channeling life's biggest challenges into meaningful action and growth.

www.letsreimagine.org

@letsreimagine

Type:

Workshop,
Caregiving, Grief, Healthcare, Living Fully, Social Justice & Race,
Former First Lady Rosalynn Carter

This event is in honor of Former First Lady Rosalynn Carter

Rosalynn Carter (August 18, 1927 – November 19, 2023) began her caregiving journey at an early age. From the time of her father’s cancer diagnosis to his passing when she was 13, Mrs. Carter helped care for him and her younger siblings. Within a year of his death, her grandmother unexpectedly passed away, and her grieving grandfather moved into their home so her mother could care for him. Since that time, President and Mrs. Carter navigated many of their own caregiver experiences in their life together. It was this journey, and the similar stories of countless other Americans, that inspired Mrs. Carter to found the Rosalynn Carter Institute for Caregivers in 1987.

Zoom

Let’s Learn: Caregiving Across Cultures

May 8, 2024

To kick off the Cultivating Caregiving series, join a conversation with a group of caregivers and leaders who share personal stories of grief and growth and traverse the current landscape of care, particularly for underrepresented communities.

Former First Lady Rosalynn Carter said, “There are only four kinds of people in the world—those who have been caregivers, those who are currently caregivers, those who will be caregivers, and those who will need caregivers.” Essentially, we’re all on a journey of care at some point so it’s time to ride the waves of the “silver tsunami”. What are the greatest challenges and opportunities of caregiving? How can we nourish ourselves? How can we support each other along the way? What innovations are happening in community and culturally-based systems of care?

Speakers 

Rev. Cynthia Carter Perrilliat, MPA, is Co-founder and Executive Director of the AC  Care Alliance (ACCA). The ACCA’s Advanced Illness Care Program™is a community based, person-centered, care navigation intervention serving individuals with chronic,  serious, and advanced illness and their caregivers, in partnership with health, faith,  academic and community-based organizations. Founded in the African American faith  community, its aim is to respect the needs and wishes of the participant, whatever their  gender, culture or faith practices. The ACCA currently provides its services in 6 counties  in both Northern and Southern California with interest in expansion to other regions of  the United States. 

Rev. Carter Perrilliat is currently a Principal Investigator for the Public Health Institute and has over 25 years of experience as a hospice and palliative care educator, trainer  and marketing professional. She has served as faculty for the Duke University Institute  on Care at the End of Life APPEAL program, which stands for A Progressive Palliative  Care Educational Curriculum for Care of African Americans at Life’s End. Rev. Cynthia is a much sought-after motivational speaker and advocate for health equity and  inclusion for communities of color. She is a past Board member of VitalTalk an  organization that focuses on curriculum and language development for physicians that  care for those with serious illness, and an ordained minister, serving at the historic Allen Temple Baptist Church, Oakland CA, as well as a gospel recording artist under her Splendor Record label. 

Under Rev. Cynthia’s leadership the ACCA received the 2023 Center for the  Advancement of Palliative Care recognition in innovation and excellence as well as the  Innovation award from the American Public Health Association and the Archstone  Foundation. 

https://www.cynthiacarterlive.com/

https://www.care-alliance.org/

Shaista S Kazmi is the president and founder of Apna Ghar LLC, the first senior care agency to serve the needs of ethnic minorities in Michigan, in particular, those from India and Pakistan.  With the intent to scale and expand, Apna Ghar currently serves elderly immigrant communities from Pakistan, Bangladesi, the Middle East, and Asia. Mrs. Kazmi trains and employs women from lower socio-economic backgrounds (including those who are recent refugees and/or victims of domestic violence) as nursing and home health aides. She believes that by helping the most vulnerable members in the community we can build a stronger foundation for a better society.  

Vivian Nava-Schellinger (she/her/ella) is Director of Diversity, Equity, Inclusion, and Community Impact for The SCAN Foundation. A proud Tejana, originally from the border region of El Paso, Texas, Vivian has utilized her legal training to efficiently and successfully merge business strategy, organizational management, and health policy to ensure that all communities have access to the information they need to make informed decisions. At The SCAN Foundation, Vivian directs TSF’s DEI strategy and operational implementation internally among staff, leaders, and the Board. Additionally, she works across program teams to incorporate TSF’s community impact work within its Advancing Health Equity in Aging Initiative. Vivian received her Juris Doctorate from the Sandra Day O’Connor College of Law at Arizona State University. She is also a graduate of the University of Texas at El Paso, where she earned Bachelor of Arts degrees in Political Science and Legal Reasoning and a Master of Science in National Security Studies. Vivian enjoys running, gardening, and listening to Chicano oldies as well as spending time with her husband, Jake, and their four dogs.

https://www.thescanfoundation.org/

Paurvi Bhatt (moderator) is a healthcare executive, trusted strategist, and global thought leader with a reputation for marshaling funds, achieving focused outcomes, and leading innovative partnership strategies that bring health, care and bereavement solutions closer to home for aging populations, their families, and caregivers. As President and Chief Impact Officer of The Rosalynn Carter Institute for Caregivers, Paurvi leverages her executive experiences at Abbott, Levi Strauss, Medtronic, CARE and USAID, USGAO, in influencing, advising, and collaborating with founders, C-suite leaders and Boards to modernize legacies, reframe referral and value pathways and build organizational cultures that meet the social issues of our time. Working across public, nonprofit, and commercial sectors of healthcare, Paurvi has a consistent record of impact working across industries and functions by aligning and distributing capital with partners that increase workforce support and expand access to home and community-based health and social services and workforce support for the elderly and immigrants worldwide. Highly skilled in strategic philanthropic and capital investments, corporate responsibility/ESG, public affairs, and human resources benefits and employee engagement for purpose driven Fortune 500 companies, private start-ups, nonprofits, foundations, and government. Board Executive leadership as Board Chair, Vice Chair, and Treasurer of global healthcare, caregiving, women's leadership, and immigrant focused private companies and nonprofit organizations. Exceptional performance against global, multi-million-dollar strategies that deliver above target and durable social outcomes and business efficiency results by connecting business acumen, stakeholder engagement and advocacy with innovative strategies that optimize investments in health systems. Respected for scaling outcomes by elevating inclusion, belonging, and organization culture as central components of team engagement and strategic partnerships that deliver social change. Authentic, second-generation Indian American, Asian woman leader, recognized for thought leadership across HIV/AIDS, women's health, and social impact. Dedicated mentor focusing on developing leadership and talent to deliver outcome focused strategies across various functions and sectors.

About the Series

Cultivating Caregiving: Seeds of Sorrow, Gardens of Growth 

More than 53 million unpaid Americans provide care to a spouse, elderly parent or relative, or to a child with special needs. The caregiving experience most often includes struggle, stress, fatigue, guilt, and grief. But can it also be a life-transforming experience to find purpose? A discovery of what matters most for you and the person in your care? 

Caregiving is commonly described as an experience in which caregivers cultivate resilience and endurance. But are there opportunities for caregivers to not only bounce back, but also bounce forward? Is there a new appreciation for life? A chance to rebuild a relationship? A possibility to increase personal strength and collective solidarity with other family caregivers? 

Programming produced by Reimagine staff and its collaborative community of event hosts will focus on a number of themes related to caregiving:

  • For caregivers of all ages, what kind of support, resources, and opportunities are available?
  • What are the ways in which caregivers navigate and process anticipatory grief as their loved ones decline? 
  • What challenges and opportunities are there for long-distance caregivers?
  • What solutions are there to our crisis of care and the absence of guaranteed paid leave?
  • How are health systems and workplaces adapting to the needs of caregivers, particularly those from immigrant families, those of diverse cultural, spiritual, and faith traditions, and those with limited English proficiency? 
  • What do you say to a burnt-out family caregiver to provide them with comfort? Better yet, what do you DO for them?

About RCI

The Rosalynn Carter Institute for Caregivers was established in 1987 by former First Lady Rosalynn Carter to promote the health, strength, and resilience of America’s 53 million family caregivers. RCI fulfills its promise to champion the family caregiver by building cross-sector partnerships, leading research projects and strategic initiatives, developing and implementing evidence-based programs, and advocating for public policy.

https://rosalynncarter.org/

@rcicaregiving

About Reimagine

Reimagine is a nonprofit organization catalyzing a uniquely powerful community–people of different backgrounds, ages, races, and faiths (and no faith) coming together in the hopes of healing ourselves and the world. We specifically support each other in facing adversity, loss, and mortality and–at our own pace– actively channeling life's biggest challenges into meaningful action and growth.

www.letsreimagine.org

@letsreimagine

Type:

Talk, Panel, & Conversation,
Caregiving, Grief, Healthcare, Living Fully, Social Justice & Race,
Former First Lady Rosalynn Carter

This event is in honor of Former First Lady Rosalynn Carter

Rosalynn Carter (August 18, 1927 – November 19, 2023) began her caregiving journey at an early age. From the time of her father’s cancer diagnosis to his passing when she was 13, Mrs. Carter helped care for him and her younger siblings. Within a year of his death, her grandmother unexpectedly passed away, and her grieving grandfather moved into their home so her mother could care for him. Since that time, President and Mrs. Carter navigated many of their own caregiver experiences in their life together. It was this journey, and the similar stories of countless other Americans, that inspired Mrs. Carter to found the Rosalynn Carter Institute for Caregivers in 1987.

Zoom